Top 100 Tips
Dealing with the initial shock
- Why did this happen to me?
- I know Hodgkin's is one of the “better cancers” – but it still sucks
- Has my life changed forever?
- I'm scared but have nobody to talk to – because nobody understands
- Will my life go back to normal once treatment has finished?
- Will people always treat me differently?
- I'm also dealing with my family dealing with it
What to expect over the next year
- How much time will I spend in hospital?
- Will I need to quit my job or study?
- Will I be reliant on others?
- Will I be able to drive?
- How tough is chemo for Hodgkin's and does it get easier?
- When will I know whether treatment is working?
- Will I lose my hair?
- Will I lose/gain weight?
- Will I be able to have children?
- Will I vomit a lot/vomit in public?
- Positive things that can arise out of the coming year
- Who should I take to support me during treatment?
Self-esteem and coping with comments from others
- How do I tell people I have cancer?
- I feel like people are talking about me and being unusually nice
- Our family issues feel so public
- People are deliberately avoiding me
- People don't acknowledge my Hodgkin's - does that mean they don't care?
- Are people always looking at my hair or am I paranoid?
- Everyone keeps telling me about their family cancer stories
- Everyone keeps telling me about the latest cure for cancer
- I feel like Hodgkin's has become my new identity - it's the first thing that people associate with me
The age thing – I'm too young for this!
- I know I'm too young for this - but why does everyone else keep reminding me?
- I'm closer in age to the hospital staff than most of the other patients
- I'm so angry but don't want to take it out on family
- I suddenly feel disconnected from my friends
- It's not fair that I have to be on health watch for the rest of my life
- Hodgkin's and relationships
Treatment – reducing side effects and the side effects they don't tell you about
- How can I reduce the nausea from chemo (the top 20 tips)
- I’ve notice a change in my smell and taste
- How can I "manage" vomiting?
- They didn't tell me about memory lapses – will it improve?
- I have mouth sores
- I've heard that I shouldn't take vitamin C during radiation therapy
- How do I take additional vitamins and supplements without vomiting them up?
- I just crave fast food!
- How do I eat during radiotherapy?
- Dealing with fatigue
- I have terrible indigestion/stomach pain – will it get better?
- I'm not getting any of the side effects they warned me about – is the treatment working?
- What about Neupogen injections?
- My skin is dry, itchy and red
- I have a yeast infection from chemo
- Will my scars from surgery fade?
- What about the tattoos for radiotherapy?
- My veins have narrowed – how do I cope with chemo and blood tests?
- I have a fever
- Can my arm get infected from the IV line?
- I have gout from chemo
- I have pink urine
- I have numbness in my fingers and toes
- I have strange spots on my body
- Will I get easily sunburned for the rest of my life?
- Why did I suddenly have a bad reaction to a CT scan?
- I've heard that meditation can help
- What about acupuncture?
- How can I supplement conventional medicine?
- Should I try to conserve energy between chemo treatments even though I feel fine?
- Will I have long term side effects?
Looking your best through treatment
- Reducing hair loss (the top seven tips)
- Alternatives to wigs
- The power of hair extensions
- Disguising sparse eyebrows/eyelashes
- Nails – can anything be done?
- The good side effects of treatment – I've heard that chemo can be good for the skin
- Getting moisture back into the skin
- Making the most of hair-free legs
The tough times – keeping busy and overcoming isolation
- I feel like my life is stagnant – everyone else is getting on with their lives
- The end of treatment feels like a lifetime away
- It's easier to sleep than to think about Hodgkin's
- I feel like screaming – my family and friends don't get it
- I’m scared to get close to other people going through cancer – what if they die?
- Other peoples’ minor problems frustrate me
- Coping with seeing the Hodgkin’s on your x-rays and CT scans
Now that I've finished treatment, is it over?
- I’m officially in remission – why is it such an anti-climax?
- Will there ever be a day when I don't think about Hodgkin's?
- When can I stop having blood tests, x-rays and CT scans?
- Check-ups just bring it all back
- I now have a medical history
- I want to help others
The next few years
- Nobody talks about it anymore, but I still think about it
- I'm worried that doing certain activities might trigger a relapse
- I'm starting to think about the risk of secondary cancers
- People complain about minor health problems – they have no idea
- Cancer comes up in conversations – do I mention that I've had it?
- Hodgkin’s has made me self-righteous
- Surviving cancer is meant to make people stronger – why don’t I feel this way?
A decade after Hodgkin's Lymphoma
- How to make sure you get on with your life
- The small reminders
- How Hodgkin's has changed my perspective
- Hodgkin's opens the door to new friendships
- Hodgkin’s – a convenient excuse
- Good things that have come from having Hodgkin’s
- Hodgkin’s isn’t necessarily a curse – it can be a blessing